My son, Oliver, was diagnosed with AHC (Alternating Hemiplegia of Childhood) in August 2014 but we have known that he was behind his peers since he was 6 months old. So I have made it my personal mission to raise funds and awareness for AHCUK, the UK charity for AHC, so that one day we may be able to find a cure for this debilitating condition.
23rd April 21k - (13.1 miles) Southampton Half Marathon - Completed - 2 hours 06 minutes 33 seconds
17th June 5k Gung-Ho with Giant Inflatable Obsticles **** with RICHARD MALEC :) ****
25th June 10k Lordshill Road Race - Completed - 57 minutes 51 seconds
Your help and support in any way is very much appreciated. Thank you :)
This is a very rare neurological condition in which the child suffers from repeated weakness or paralysis down one side of the body. This damage can include cognitive impairment, behavioural and psychiatric disorders and various motor impairment. AHC is an ultra rare condition affecting less than 1 in 1,000,000 people.
We are a support group for families with children who suffer from Alternating Hemiplegia of Childhood and aid research to find a cure for this ultra rare condition. This condition effects less than 1 in a million and causes alternating temporary paralysis of one or both sides of the body, epilepsy, dystonia, learning disability and neurological abnormalities, poor motor organisational skills.