Micheal, Jo, Daneshay, Katie, Liz, James, Emily, Robyn, Sharon, Hanna, Ian, Julie, Christopher, Colin & Valerie will be taking on a 26 mile London Marathon Walk to raise funds to support children and families fighting Batten Disease.
Batten Disease is a horrible neurodegenerative condition where children are born healthy and over time during their childhood they loose their sight, mobility, cognitive abilities, memory and in all cases, their life.
Batten Fighters Forever (BFF) is focussed on raising awareness of Batten Disease and the support needs of children and families with
Batten Disease. BFF will provide grants to directly assist children and
families as well as other charities and organisations providing support.